CASE PRESENTATION

CASE TITLE: Gelsinger Case

DESCRIPTION of the case by student: Jesse Gelsinger, 18 died during a gene therapy experiment in September of 1999. Gene therapy is a way that scientists can possibly prevent a disease by changing the expressions of a person's genes. This experiment however is still in the beginning stages and involves many ethical issues, and harmful complications that could arise, which in this case is death. The family sued this research team based on lapses in the original experiment. The issue of informed consent also comes into question, because the family was not properly informed of the risks that may happen, which in this case did happen.

url's for the Articles Describing case:

This article is talking about the lawsuit- http://www.washingtonpost.com/ac2/wp-dyn?pagename=article&node=&contentId=A30464-2000Sep18

This article talks about the harm in gene therapy experimenting as it pertained to this case

http://www.washingtonpost.com/ac2/wp-dyn?pagename=article&node=&contentId=A26062-2000Jul12&notFound=true

This article voices the fathers opinion on gene therapy followed by other research on gene therapy

http://www.washingtonpost.com/ac2/wp-dyn?pagename=article&node=&contentId=A1358-2000Feb2&notFound=true

This article talks about Jesse's disease

http://www.gene.ch/gentech/1999/Dec/msg00005.html

url's for Articles with Ethical Position: Philosophers, Theologians, Lawyers, Medical Doctors

LeRoy Walters, Georgetown University, talks about the ethical controversies on gene therapy

http://www.ornl.gov/hgmis/publicat/hgn/v10n1/16walter.html

This article talks about the legal side of gene therapy

http://www.georgetown.edu/research/nrcbl/scopenotes/sn24.htm

This article talks about the medical position of gene therapy

http://www.faseb.org/genetics/ashg/policy/pol-40.htm

This article offers different scenarios about gene therapy and the ethical ideas on each

http://strategis.ic.gc.ca/SSG/bb00010e.html

This is just an extra article that talks about gene therapy and includes some rather interesting articles that I didn't use