Chapter  10: Care of the Dying

Section 3. Presentation of Issues.

VIDEOS:

VIEW: On Death of Humans  Perspectives on Death: Crash Course Philosophy #17

Ending life and Ethics

Woman fights for right to die 

 http://www.blinkx.com/watch-video/woman-fights-for-right-to-die/DVQ9Xj90bkjR141cVsHnzA

End-of-Life Care: Weighing Ethics and Rationing Resources

 http://www.youtube.com/watch?v=RiTp1w48P3E

 LSE Professor Questions Moral Basis for Euthanasia

http://www.youtube.com/watch?v=3DHiSrRF0Ys

VIEW:  Assisted Death and the Value of Life: Crash Course Philosophy #45

Euthanasia
        In order for one to decide the morality of euthanasia, one must first properly define the term.  What is the difference between euthanasia and suicide?  If one is suffering from a fatal illness that is causing intense, prolonged pain with no hope of subsiding, is it euthanasia or suicide for that person to take his or her own life?  Likewise, if one in the same medical situation with the same prognosis secures the help of a physician in ending his or her life, does this action constitute euthanasia or murder?  What are the deciding factors that make the difference? 

        Although the question currently remains unanswered, there have been attempts to clarify, categorically, the different types of euthanasia.  Active and passive are terms that hope to bring some quantification to the quandary.  The difference between the two are relatively simple; active signifies the act of killing (lethal injection, deadly gas inhalation, etc) and passive applies when one has been allowed to die without direct intervention to assist one’s death (withholding medication needed to sustain life).   The active/passive distinction, however, is not been embraced by everyone.  Critics claim this distinction is not enough to provide a guideline to the ethics of such an action.  Many have complained that both version, regardless of the involvement of death strategies, are in effect causing death and therefore immoral.  Additionally, the autonomy of the patient is not addressed in either the passive or the active argument, which brings up another categorical perspective attempting to clarify the morality of the issue. 
        The difference between voluntary and involuntary euthanasia is the next step in distinguishing euthanasia from suicide/murder.  The difference between them is as simple as it seems.  Voluntary is when one opts for death, either by one’s own hand or with the requested assistance of another, and involuntary is when another decides that death is the morally correct course of action, when the person who dies has specifically expressed the desire to live.  There is additionally one final condition to the voluntary/involuntary perspective; nonvoluntary euthanasia is when the patient gives no opinion about life or death and the decision is made by the physician or family and/or friends. 

        With the assistance of combinations of the proposed categories, the styles of euthanasia can be defined as follows:

1.      Self administered
a.      Active
b.      Passive
2.      Other administered
a.      Active and voluntary
b.      Active and involuntary
c.      Active and nonvoluntary
d.      Passive and voluntary
e.      Passive and involuntary
f.      Passive and nonvoluntary (Munson Intervention and Reflection –( 204-205)

But how effective are these distinctions in defining euthanasia and do they differentiate when such a death is moral?  Unfortunately, they have not clearly defined the boundaries of such ethical dilemmas.  The morality of assisted death remains in the eye of the individual. 

        Nevertheless, maybe the categorical approach only confuses the reality of one’s motive to act in the best interest of another.  If indeed, active nonvoluntary euthanasia is immoral, what implications does that really embody?  If a person is fatally ill, inevitably facing a future of extremely pain that will, in all probability, linger for an extended period, months or years, does one then have the inherent reasoning to provide an act of mercy for the benefit of he or she who suffers?  When a child comes across a bumblebee, dying in the cold of autumn, and shows compassion for the suffering insect by swiftly crushing it under foot, was that an act of mercy or just the willful murder of a weaker, helpless creature?  If we can agree that the bug’s death was motivated by mercy and compassion in an attempt to end prolonged suffering, why wouldn’t a human being deserve that same mercy and compassion? 

        The fact remains that a bumblebee and a human being are truly very different creatures with no reasonable comparison in inherent value; but then again is the morality of an action embodied in its motive rather than in it’s outcome?  Since the outcome determines the continuation or extinguishing of human life, the matter is of dire concern.  No quick, off-the-cuff decisions will do.  The one main difference between the bug and the human is the ability to communicate an autonomous decision either way.  Since a person is considered reasonable because of his or her ability to communicate his or her desires, level of pain/suffering, feelings of surrender, etc, then that ability could be the deciding factor when one opts to be euthanized regardless of passive or active status of the action.

        The problem then becomes the person’s clarity of reasoning.  Does pain, and/or depression, symptoms that commonly accompany fatal illness or injury, interfere with one’s ability to make an autonomous decision?  If so, who then who is deputized to make such decisions concerning future existence for the person who suffers?  A new problem may then arise; a patient may find themselves at the mercy of an unauthorized guardian, making decisions by proxy.  Herein lies the next aspect of consideration, advanced directives. 

        Cases like Terry Schiavo, Nancy Cruzan and Karen Quinlan all emphasize the need for advanced directives.  While clear-minded and healthy, one could decide what kind of treatment would be desirable and at what stage of injury or illness, at what condition of existence that treatment would preferably be denied. Although there is no guarantee that physicians and family members would follow such directives, it would leave no doubt as to one’s will should a catastrophe occur.  Unfortunately, even when physician’s are willing to respect the predestined instructions of a patient, in many cases where the patient is unable to communicate, the physicians will ignore the directives pre-ordained by the patient and follow the instruction of his or her family.  The simple truth of the matter is, “Families never sue because of the overtreatment of a patient, but they do sue because of withholding or discontinuing treatment.” (Munson Intervention and Reflection– 194)              

*************************************************************************

DEFINING DEATH

What criteria should be used to make a determination that a human being is dead?

It is not always so easy to make the determination correctly.   Mistakes have been made and recorded as such going back centuries with people being buried alive.  Today the mistakes become realized when the non-so-dead body with a death certificate completed is about to be either: autopsied, prepared for burial, or prepared for organ donation.  

Here is just one recent case:  ‘Dead’ pastor shocks docs with ‘miracle’ movement just before organs are harvested By Andrew Court September 5, 2022 4:37pm

Here are possible options for criteria to use to pronounce some human being to be dead:

  • Traditional Heart Lung Criteria
  • Whole Brain Criteria- No Consciousness, No Brain Stem Activity, IRREVERSIBLE COMA
  • Uniform Determination of Death Act - Adopted by > 35 states not by New York
  • Higher Brain - Coma with brain stem activity
  • Personhood- neo cortex- loss of what is essential and characteristic

The Problem of Death : When is a person dead?

  • The Traditional View: A person is dead when there is a permanent cessation of breathing and blood flow.
  • The Whole-Brain View: A person is dead when there is a complete and irreversible cessation of all brain functions.
  • The Higher-Brain View: A person is dead when there is a complete and irreversible cessation of all consciousness.
  • The Personhood View: A person is dead when the features essential to meeting either the criteria for personal identity or the criteria for personhood are lost.

A definition of Irreversible Coma was presented in (JAMA Aug. 1968 ) and the committee of the Harvard Medical School that set it set the medical standard for complete and irreversible loss of all brain activity. There should be no doctor of medicine that does not know the four criteria set out by that report.  Since the appearance of that report the criteria set out by the Harvard Committee has set the standard in the USA and over 100 countries in the world.

According to the Uniform Determination of Death Act of 1981 (model legislation endorsed by both the American Medical Association and the American Bar Association, meant to guide state laws on the question of death), you are dead if you have sustained “either irreversible cessation of circulatory and respiratory functions” or “irreversible cessation of all functions of the entire brain, including the brain stem” — in other words, no heartbeat and no breathing, which is obvious enough, or no brain function, which requires an electroencephalogram.  That type of irreversible cessation is termed irreversible coma.  Irreversible coma = medical diagnosis and prognosis Irreversible coma = complete and irreversible loss of all brain activity  In diagnosing irreversible coma there are two conditions that need to be excluded first because a person with either of them may appear to have no heart, lung or brain functions and yet that person may have them restored.  The two are central nervous system depressants in the body and hypothermia-very low body temperature.

According to the Uniform Determination of Death Act of 1981 (model legislation endorsed by both the American Medical Association and the American Bar Association, meant to guide state laws on the question of death), you are dead if you have sustained “either irreversible cessation of circulatory and respiratory functions” or “irreversible cessation of all functions of the entire brain, including the brain stem” — in other words, no heartbeat and no breathing, which is obvious enough, or no brain function, which requires an electroencephalogram.

In 49 states the legal authority set out laws that recognize a "medical standard " to determine an irreversible cessation of all functions of the entire brain.

Irreversible coma is the "medical standard " to determine an irreversible cessation of all functions of the entire brain.

There are over four different definitions of "brain death" in the world of medicine.

"Brain death " is a highly ambiguous phrase.

Doctors can be very, very loose with that phrase. It ranges in their use from partial brain destruction to whole brain loss of activity.

There have been many cases of people declared "brain dead" who recovered consciousness.

There are no cases of anyone declared to be in an irreversible coma having recovered any brain activity at all.

Far better to inquire and investigate to insure that irreversible coma has occurred and then in 49 states that person is legally dead.

In NY the person in irreversible coma may be declared dead but does not need to be.

In NY people are being trained to check for irreversible coma and then say a person is brain dead.  Here are guidelines in New York

In the NY document :

An individual who has sustained either:

  • Irreversible cessation of circulatory and respiratory functions; or
  • Irreversible cessation of all functions of the entire brain, including the brain stem, is dead.

A determination of death must be made in accordance with accepted medical standards.

So the accepted medical standard is in the second clause that of the criteria for IRREVERSIBLE COMA, which is actually not a coma at all but conveying the appearance of continuing unconsciousness due to artificial support systems.

CASE: Hypothermia

Here is and example of the latter case:  Defining death. Hypothermia  A Mount Rainier hiker was 'essentially dead' for 45 minutes -- until a team of Seattle doctors revived his heart   This case indicates one of the latest methods for raising bpdy temperature without harming brain functioning. It was reported by Marika Gerken, CNN  Updated 1:36 PM ET, Sat November 21, 2020

CASE: Reluctance of public to accept the law

California’s Health and Safety Code 7180 states that an individual who has sustained “irreversible cessation of all functions of the entire brain, including the brain stem, is dead.” Although the law is clear the public does not understand the standard as well.  Some believe due to religious or personal beliefs that a person with some organ functioning is still alive.  Some hope and pray for a miraculous restoration of functioning despite there being no brain activity at all.  See the case of Jahi McMath 

When Jahi McMath was declared brain-dead by the hospital, her family disagreed. Read more here  https://www.newyorker.com/magazine/2018/02/05/what-does-it-mean-to-die

CASE: Reviving Brain Activity

The matter of when a person is really and finally dead gets even more complicated when there is research such as this A blurry question: When does life end?  reported by Michael Dobie concerning the temporary revival of pig brains in a lab creates scientific and ethical issues.

Advanced Directives:

These include

  • Do Not Resuscitate Orders- DNR's
  • Living Wills
  • Proxy Appointments-Legal Agents--click on link for PROXY FORM for New York State

The Right of Self Determination:

1. Children- guardians make decisions and may not refuse imperative (life saving) procedures

2. Adults

A. Incompetent - court appointed guardian makes decisions and may not refuse imperative 9life saving) procedures

B. Competent- may refuse any and all treatments:

Exceptions: prisoners and those with dependents may not refuse imperative treatments

C. Formerly Competent and now incapacitated

READ: My Father Didn’t Want to Live if He Had Dementia. But Then He Had It. Oct. 23, 2023 By Sandeep Jauhar

READ:  When Patients Choose to End Their Lives By Jane E. Brody  NY TIMES April 5, 2021 

OPTIONS for making decisions at the end of life:

  • Doctor Decides
  • Committee of Doctors
  • Advanced Directives
  • Document: Living Will
  • Surrogate: Durable power of Attorney: PROXY
  • Next of Kin
  • Court

In New York State there is now  New York’s Family Health Care Decisions Act (FHCDA)

Family Heath Care Decisions Act Information Center

The FHCDA Information Center is a project of the NYSBA Health Law Section.  It is designed as a resource for all persons – including health care professionals, health care attorneys, advocacy groups, policymakers and members of the public – who are seeking information about the FHCDA.

New York's Family Health Care Decisions Act   explained by David Goldfarb  of Goldfarb Abrandt Salzman & Kutzin LLP

New York’s Family Health Care Decisions Act: The Legal and Political Background, Key Provisions  and Emerging Issues By Robert N. Swidler

"New York’s Family Health Care Decisions Act (FHCDA)1 establishes the authority of a patient’s family member or close friend to make health care decisions for the patient in cases where the patient lacks decisional capacity and did not leave prior instructions or appoint a health care agent. This “surrogate” decision maker would also be empowered to direct the withdrawal or withholding of life-sustaining treatment when standards set forth in the statute are satisfied.

On March 16, 2010, Governor Paterson signed the FHCDA into law at a ceremony at Albany Memorial Hospital. The key provisions became effective on June 1, 2010.2"

 

A form is available here for >>>New York Living Will | Document Directing Health Care

Download a pdf form here>>> FORM

Here is a link to the form for the NEW YORK STATE DEPARTMENT OF HEALTH Medical Orders for Life-Sustaining Treatment (MOLST) here>> https://www.health.ny.gov/professionals/patients/patient_rights/molst/

Avoid putting others in the position of making decisions for you when you cannot do it for yourself.

Fill out an advance directive: 3 types  Fill out all three

  • Medical Power of Attorney: it gives an agent the authority to make medical decisions for you if you are incapacitated.
  • Living Will: it allows an individual to state preferences for medical treatment, focusing on end-of-life decisions.
  • Advance Directive: it includes the instructions collected in a Living Will and in a Medical Power of Attorney.

FIND THEM ALL HERE>>>  FORMS

https://www.lawdistrict.com/power-of-attorney/medical/?utm_source=google&utm_medium=cpc&/?utm_source=google&utm_medium=cpc&gad_source=1&gclid=CjwKCAjww_iwBhApEiwAuG6ccN3cMOKTkDO-z21xQj3niB_ZjiyXdSXKSgS3bA8OdY945Cyyits5KBoCm5YQAvD_BwE

Another example of a LIVING WILL: https://eforms.com/living-will/new-york-living-will-document-directing-health-care/?utm_content=Power+of+Attorney+General&gclid=CjwKCAjw6qqDBhB-EiwACBs6x-FtISNmZ-lGDip9X0xU7DXaBPKvW6uQTxBJtVEhiL3ijUjwOA53rxoCjC0QAvD_BwE

Health Care Proxy Form -for each state

https://formswift.com/health-care-proxy?utm_source=google&utm_medium=cpc&utm_campaign=180942738&utm_device=c&u_producttype=formswift&utm_term=&gad_source=1&gclid=CjwKCAjww_iwBhApEiwAuG6ccDB_KrWDb3UCYUD6SEoVv7voz9rKtyjx847UGD9bdGjGd7k4wyf7YBoCHR4QAvD_BwE

This next form  (MOLST)  must be filled out related to an actual medical facility and medical staff and recognized in NEW YORK STATE.

Medical Orders for Life-Sustaining Treatment (MOLST)

INSTRUCTIONS:  MOLST is the Medical Orders for Life-Sustaining Treatment and the POLST is the Physician Orders for Life-Sustaining Treatment. They're both the same thing, but in different states they call them by different names.   https://www.health.ny.gov/professionals/patients/patient_rights/molst/

FORM:   MOLST(DOH-5003), Medical Orders for Life-Sustaining Treatment (MOLST),

  ==========================================================

ETHICAL THEORIES

Natural Law:

No direct termination of a life. Indirect is allowed. Pain relief even unto respiratory failure is permitted. No moral obligation to treat the hopeless cases. Allowing to die is permitted allowing nature or God's Will to take their courses.

UTILITARIAN:

Action or inaction that leads to death is correct when it alleviates suffering and promotes the general welfare and better feelings (utility).

Kant:

Rational agents have the duty to preserve their lives if possible. No deliberate suicide. When agent is no longer capable of rational thought then there is no longer a duty to preserve that life. Allowing to die is thus permitted and compatible with Kant's principle even if not required as a perfect duty.

Ross:

Duty to fulfill promise and a duty to act in a person's best interests.

Rawls:

Maximize Liberty and allow for self determination. Minimizing the disadvantages allows for terminating treatments and hastening the death of the hopelessly ill and suffering.

 **********************************

The classification scheme is somewhat artificial, but it gives us a way to conceptualize various morally relevant aspects of euthanasia. For example, was the euthanasia voluntary, involuntary, or nonvoluntary? Was it self- or other-administered? Was it active or passive?

To be sure, there are likely to be some cases of euthanasia which are hard to classify. There may also be classifications for which there are no cases. For instance, at the close of class an astute student suggested that perhaps there is no such thing as active self-administered nonvoluntary euthanasia.

Here is a worksheet of sorts. The first table draws distinctions between the different kinds of Euthanasia. It is useful to write in examples of each kind of Euthanasia in the table. For instance, a common example of Active Involuntary Other-Administered Euthanasia is murder.

Distinctions Among Cases

Self Administered

Other Administered



 

Active


 

Voluntary



 


 


 

Involuntary



 


 


 

Nonvoluntary



 


 


 



 

Passive


 

Voluntary



 


 


 

Involuntary



 


 


 

Nonvoluntary



 


 


 

Let's now consider the implications of some of our theories for each of the kinds of Euthanasia. For example, it should be clear that the second formulation of the Categorical Imperative implies that Active Involuntary Other-Administered Euthanasia is morally wrong.

NLT

Self Administered

Other Administered



 

Active


 

Voluntary


 

 

Involuntary


 

 

Nonvoluntary


 

 



 

Passive


 

Voluntary


 

 

Involuntary


 

 

Nonvoluntary


 

 

KET

Self Administered

Other Administered



 

Active


 

Voluntary


 

 

Involuntary


 

 

Nonvoluntary


 

 



 

Passive


 

Voluntary


 

 

Involuntary


 

 

Nonvoluntary


 

 

SCT

Self Administered

Other Administered



 

Active


 

Voluntary


 

 

Involuntary


 

 

Nonvoluntary


 

 



 

Passive


 

Voluntary


 

 

Involuntary


 

 

Nonvoluntary


 

 

 

Proceed to the next section of the chapter by clicking here> next section.

© Copyright Philip A. Pecorino 2002. All Rights reserved.

Web Surfer's Caveat: These are class notes, intended to comment on readings and amplify class discussion. They should be read as such. They are not intended for publication or general distribution.

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